Hello and welcome to Little Miss Lucia’s Lymphoedema Life blog! Lucia is my beautiful daughter, born on 12/03/12 with all ten fingers and all ten toes. However, her 10 perfect toes were puffy, as were her feet and legs. After months of tests and hospital appointments she was finally diagnosed with Primary Lymphoedema.
This blog is my way of recording our lives with this condition – me, Lucia’s daddy and her adorable big brother Max. I hope other parents of children with this condition may find it helpful to read about those in a similar situation and how we are getting on. I know I have found it quite an isolating condition because it is so rare and no amount of googling has brought me very many stories I can relate too.
I also hope that this will be a positive blog as our two children are wonderful in every way and we are very blessed to have them. We have just had to make some changes to our daily lives to fit in the care needed to ensure Lucia’s Lymphoedema is managed appropriately.
Thanks for reading.