So I have about three blog posts written in my head that just haven’t made it on here yet – mainly because we were too busy enjoying the summer holidays before school kicked in, and then school started and it’s been a bit manic getting used to new routines.
So here is the first post which is a follow-on from my last one about Lucia’s compression. I was totally overwhelmed by the response I got and cannot thank everyone enough for all of the invaluable advice and support we received both in the comments and by email.
As you are aware we’d been struggling to find the right compression garments for Lucia and were getting increasingly frustrated as the months went by, because we kept getting let down with ill-fitting garments from our previous company.
So we decided to try a different company – and we are now in a much happier place. Enter Juzo.
Juzo was not a company we had tried before but we had a good look through all of their different types of garments, chose a pair that didn’t seem too thick or heavy and got Lucia all measured up. Unfortunately however, the type we had picked couldn’t be made in Lucia’s small size so instead they suggested Juzo Expert range.
To begin with, I’d like to say how amazing their customer service is – they were in constant contact with Lynne and with the pharmacy every step of the way so we knew exactly what was happening and when we would be receiving the garments.
And then they arrived. In all honesty my first impressions were a bit, ‘Oh no, they seem very heavy and ribby’ because previously we had been used to much lighter, smooth compression. However, these new garments were flat knit as opposed to circular knit, so they were always going to be different.
But they were impeccably made – you could see the time and effort that had went into making them, just for Lucia, and the quality was fantastic. I also found out that Juzo’s quality control is stringent and the first pair made for Lucia didn’t pass – so it is good to know how strict they are at ensuring everyone gets exactly what they need.
Getting them on
For the first 10 days or so after receiving them, Lucia point blank refused to let us put the tights on her. And when Lucia has her mind made up it takes A LOT to change it. She just said, ‘they weren’t her tights’ and I can see see where she was coming from as they were very different to what she had been used to.
However, after much talking (and bribery, obviously!) we finally got her to agree to try them on. The first fitting took almost half an hour (and two sore shoulders on my part) to get them on! But this meant that a) we were learning how to fit new garments and b) they were excellent compression – and we got there in the end.
The fit was brilliant. I know this might sound like a daft statement but they really were made for her. They fitted her everywhere to a tee. They fitted her feet so no squashed toes, the leg length was right so no gathering at the tops of her thighs, they came up far enough but not too far on her belly, there was no gaping waistband – they were brilliant. And most importantly, Lucia said they were ‘comfortable’.
Breaking them in
Once they were on Lucia did also say they were very tight, but the little super star managed them for about two hours on the first day before wanting them off. They we just slowly built up her time in them day-by-day until after a week or so she was able to manage them for between 8-10 hours each day.
And once we could see she could handle them and how beautifully they fitted we ordered another pair – both in ‘almond’ which is a sort of beige. We finally had made a break through and the relief was ureal!
Colours, colours, colours
The next brilliant thing about Juzo is their colour range. Lucia was due to stat big school in September and the girls can either wear white socks or red tights. Obviously the socks weren’t an option and we considered getting red leggings to put over her tights so she could be just like all the other girls. But then we discovered Juzo had a reddish option in the Expert range. The official name is ‘Cosmic Coral’ so we weren’t sure if they would be more pink than red – but when they arrived and Lucia saw them for the first time she actually squealed with excitement in the car shouting ‘They’re red, they’re red! I love them!’
And when we tried them with her uniform they looked perfect – and because they have that slight rib they just look like ‘normal’ little girls school tights. I have never been so happy! (Combined with the red in her uniform they pass as red but they also look more pink with other clothes, so they are pretty versatile.) I’m keeping the gorgeous photos of her in her uniform for the next post but the above photo shows the lovely colour and fit.
So finally, after months and months of stress, worry and fears it feels like a massive weight has been lifted from our shoulders. It’s only when something finally works out that you often realise just how much anxiety you are holding onto – and when that anxiety is about the welfare of your daughter and her medical condition it is understandably pretty huge.
But now we are in a great place compression wise and Juzo are my absolute heroes right now.