I really wanted to share this wonderful story of Aoibhe – and thanks to her lovely mum Donna for allowing me to. As part of Lymphoedema Awareness Month in March, Donna told Aiobhe’s story to ‘Mummy Pages’ and it really made me smile.
It can be very hard to find stories about Lymphoedema that are positive and as a parent of a child with Lymphoedema these scary stories can be extremely upsetting. The media in particular always like to take the ‘doom and gloom’ angle in any story because quite frankly they think it makes for a better story.
It was so refreshing to read such a positive account and in Donna’s words, ‘to show that once Lymphoedema is managed, life can be good’. So thanks to Donna and to Mummy Pages as well for telling a different side to the condition.
I whole heartedly agree and this was exactly why I started this blog – to counteract some of the worst case scenario stuff that we felt swamped by in the beginning. Positivity and getting on with life is paramount for us.
Click here to read the article and enjoy!
Thank you Jo Ann life in general is hard enough and when you add a chid with additional needs into the mix it can be even more difficult. Aoibhe is now 7 and it is only in the past year that I have connected with a few other parents which is fantastic to see how others cope. Some of your blog posts make me smile and see that life can be normal even though there is extra caution needed for some activities. For years I researched online and always came up with worse case scenario and it frightened the life out of me. Now I know if we manage lymphoedema it can be kept at a certain level and not allowed to develop to worse case. Our trip to the foldi clinic also gave me great strenth and positivity and I promise I will share this journey with you soon xx
You are welcome – thank you so much for allowing me to share it. I am so glad you now have other parents to relate to – the difference it made to us finding a few others in the same position and getting on with enjoying life (albeit with a few different considerations) was wonderful and the support is invaluable. Really looking forward to hearing about your Foldi experience. Happy Easter to you, Aoibhe and the rest of your family.xx
Jo-Ann can you tell me what/where ‘mummy’s pages’ are never heard of them before
H x
It’s really good Heather – as Donna says the one her story featured in is the Irish version but there is also a Mummy Pages GB too. Follow them on Facebook, they posts loads of interesting stories.x
Hi Heather, mummy pages or in this case mummy pages.ie are an online magazine I suppose you would call it. They post all sorts of news/stories online throughout the day. You can follow them on facebook, twitter etc.
Jo Ann many happy returns to you Lucia and family. Hope the Easter Bunny is goid to you all x
Thanks for sharing