So this is the first post not about Lucia – instead it is a little bit about one of the lovely families that got in touch with us through the blog, how much they have helped us by sharing their experiences and advice as well as the amazing job they are doing to raise awareness of Lymphoedema.
Heather and Andrew are parents to Isla – a gorgeous three-year-old little girl from Scotland who was also born with Primary Lymphoedema in her legs and feet. Their journey almost mirrors ours in how lost and alone they felt in the beginning not knowing what was going on with their child, pushing for answers, spending nights researching and worrying before finally getting a diagnosis and then beginning daily treatment.
Isla now wears toeless, knee high, flesh coloured compression socks, Heather and Andrew carry out MLD on her everyday and Heather often spends nights rubbing Isla’s legs when they are sore.
From what I know about Isla she sounds similar to Lucia and is a very active wee girl who doesn’t let her Lymphoedema stand in her way.
For us, this family has been amazing. Because Isla is 18 months older than Lucia they have been through many of the issues that we are starting to face – and their advice has been invaluable. After the beach episode Heather was able to empathise with our anxiety and then give us fantastic help on how to cope better the next time which has given me so much more confidence.
Thanks to her we now have a comprehensive first aid kit, will be checking out Lellie Kelly shoes (exciting!) and we just love to see another little girl with Lymphoedema enjoying life to the full.
On top of all of this, Isla and her mum and dad recently featured in a fantastic news feature on Scottish television to help raise awareness of Lymphoedema. I know how much courage it took to do that interview and it has been seen all over the world! Here is the link so make sure you have a watch – if you haven’t seen it already! glasgow.stv.tv/135795/ pic.twitter.com/TkCEkD0YJS
I am so glad to be in touch with this wonderful family and look forward to staying in contact and supporting each other as our girls grow.