Over the last few weeks Lucia has had wrinkly knees and ankles and a baggy bum. Or rather, her tights have been wrinkly! All of a sudden her compression tights seemed to lose some of their tightness which I know is normal when they have had daily wear for a couple of months. On the plus side they have been much easier to get on in the mornings but on the down side it means they aren’t doing the job they should be doing just as well.
So off we went to see our Lymphoedema Physio to get measured for some new garments. And we left on cloud nine! First of all, Lucia sat like a little angel getting 15 dots marked on specific points on her legs and feet and then being measured around them. She is so comfortable in Lynne’s office now and just makes herself at home which we love as she is happy during this important part of her life.
And secondly…her measurements have mostly all reduced since we started compression in January. Some of them by up to 3cm! We knew to look at her that her feet and legs were looking great and feeling great, but to see in black and white just what the reduction has been is amazing!
We are so proud of Lucia for helping us to manage her condition so well. Children are so resilient and it is easy for adults to underestimate how they may be able to cope in any given situation but Lucia just takes life with Lymphoedema in her stride and it doesn’t hold her back one bit. By allowing us to carry out her ‘rub’ and wearing her compression everyday she is helping us to ensure that we are doing everything we can to keep her Lymphoedema in the good condition it is in and slowing any progression.
So this time we have ordered more closed toe tights as they have been working so well and a pair of closed toe knee high compression socks for the summer. The socks will be trial and error though as we don’t know if they will be suitable for her. The problem with her lymphatic system may be in her thighs, in which case the socks will not be of any use, but we won’t be able to see where her specific problem is until she gets the Lymphoscintigraphy dye test – and that is years away yet.
So we will try the socks so she can have a little bit of a breather from tights on warm days and keep a close eye that it is not to the detriment of her thighs.
All in all, it has been another great week with the reduction in Lucia’s legs and feet and with Max who won Player of the Week in his Football Coaching! And it is a bank holiday weekend. Life is good.