When I came home from work a few days ago I was very excited to find the Spring edition of Lymphline Newsletter had arrived! I always look forward to getting it and reading about the latest research into Lymphoedema and the various personal stories – but this issue was particularly special as it included our family’s story along with a gorgeous photo of Max and Lucia.
Lymphline is the quarterly newsletter sent out to members of the fantastic Lymphoedema Support Network (LSN) based in the UK. The LSN offer an amazing wealth of information about the condition and when you become a member you are sent out a brilliant range of leaflets and fact sheets that are regularly updated. We received a brilliant pack full of information specifically for children which was the first time we had got our hands on something that was tailored for us – and as you can imagine we read every word.
Just before Christmas I contacted the editor of Lymphline, Anita Wallace, to see if there was the possibility of starting a ‘Kid’s Corner’ in each addition for parents like us and her response was fantastic! She asked me to start the ball rolling with Lucia’s story – so we did!
I really enjoyed writing the article – the main part of my job is writing – so to have been able to write about something so important to me was very therapeutic and was actually what inspired me to start this blog, so thanks to Lymphline for that!
If you haven’t come across the LSN – whether you are UK based or not – I highly recommend having a look at their website. The LSN is a registered charity run by people who live with lymphoedema and is the largest information provider about the condition in the UK. They know what you are going through. You can find them at www.lymphoedema.org