These wishes are a few days later than they should be but Happy New Year! The year 2016 sounds like we should be getting into those space age years and I know when I was a child I assumed there would be flying cars by now – but that hasn’t happened just yet!
However, there has been lots of exciting research going on in the world of Lymphoedema and I’ll take that over a flying car any day.
The picture I have used on this post is artwork by Banksy. My sister bought us a large print of it for Christmas and I absolutely love it. We just hung it on the wall today and I can’t stop looking at it and reading the message – THERE IS ALWAYS HOPE.
Everyone needs hope in their lives and we have a lot of it for small things and large things. Think how often you use the word ‘hope’…from hoping the rain will stay off to hoping the children have a good day at school.
Our main big hopes though are that our children will grow up happy, healthy and confident in who they are and we hope we are doing all the right things to ensure this happens.
We also hope that someday there will be a cure for Lymphoedema – that there will be something that can help our little girl continue to live life to the full, just the way she does now.
When Lucia was first diagnosed with Lymphoedema at five months old the prognosis of having this chronic, progressive, incurable condition wasn’t great. But the leaps and bounds that have been made over the last three years have been astonishing.
So much going on
On a daily basis we are reading more and more about how Lymphoedema treatments are moving forward. We regularly read articles on a super microsurgical technique called ‘Lymphatic Venous Anastamosis’ (LVA), which joins defunct lymphatics to functioning veins and the Lymph Node Transfer procedure which involves taking lymph nodes from unaffected areas and transplanting them to replace damaged or missing lymph nodes.
There is a new way of mapping the lymphatics with indocyanine green (ICG) lymphography which essentially shows what is or isn’t working and is something we’d be really keen for Lucia to have at some stage so we can pin point her issues.
And of course there is all of the ongoing genetic research as well which Lucia is involved in and gives us a lot of hope, especially now that there is a chance they may have found the gene that has caused her lymphoedema. (Read more on that here). There has been exciting advancements in gene therapy and who knows, maybe one day we may be part of that too.
All of this is just the tip of the ice berg. There is so much more going on that we can’t even begin to understand – but it all gives so much hope. Bring on 2016!