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little miss lucia's lymphoedema life

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Archives for August 2015

Dreams REALLY are made of sand, sun and sea…

August 29, 2015 by Jo-Ann Greene 10 Comments

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‘Dreams are made of sand, sun and sea’ – I remember reading this quote quite some time ago and thinking nope, my nightmares are made of sand, sun and sea. I have always been pretty terrified of taking Lucia to the beach because of the possible implications it has for her Lymphoedema. You can read our very first experience here

The beach is somewhere we have only been to a handful of times over the last few years and many of those times it was winter and we were all bundled up in coats, hats and wellies. This meant no worries about sand getting under toe nails, no panic about her standing on pebbles or shells and no scrapes or cuts that could lead to infection.

Breaking the fear

However, I think this fear has been well and truly broken. When the lovely parents of a very dear friend of ours heard about Max breaking his leg and us cancelling our holiday to France, they offered us the use of their caravan which is located on the beautiful North Coast of Northern Ireland. So we took them up on this very kind offer and headed up last week.

The caravan is a one minute drive from the most beautiful beach and the day we arrived the sun was shining, so we decided to nip down for half an hour to enjoy some sea air. When we arrived and stepped onto the sand I couldn’t get over how soft and clean it was and as the kids jumped excitedly out of the car I must have had some kind of out of body experience as I said to Daryn…’take Lucia’s tights off’. I honestly don’t know what came over me!

Max had his shoes off in seconds and was away crawling around the sand, trying to dig a hole with his hands and just enjoying the warm feeling of it on his feet. After weeks couped up in a heavy cast he had the biggest smile on his face as he buried his feet in the sand. The beach was also a fantastic way to help Max strengthen his leg without even realising it as the sand worked his little muscles!

Joy, joy, joy

Then Lucia’s bare feet hit the sand – for the first time EVER. I cannot describe the pure, unadulterated joy that she expressed at this simple pleasure – one that we all take for granted and never fully appreciate. Watching my three year old daughter experience it for the first time brought tears to my eyes and I couldn’t take my eyes off her.

I know in my last post I talked about how ‘free’ she seems when her compression garments are off – but this was freedom on a totally new level. She was completely liberated. Her little face lit up with glee and her eyes shone with absolute delight. The excitement she felt was simply unparalleled. She ran up and down, crawled on her hands and knees, rolled about, scrunched up her toes, made sand angels and even face planted in it! And the whole time she was doing this she was squealing with happiness.

And as for the sea…she ran in shrieking at the cold but loving every second. She ran in and out over and over, splashing through the little waves, kicking up the water and had her first ‘swim’ when she fell over!

What we thought was a quick visit turned into 2 hours of fun. Two hours of the four of us jumping over waves, splashing each other, building sandcastles and enjoying some wonderful family time.

I did keep an eagle eye out for anything on the sand that may have caused injury such as shells or pebbles and lifted anything I thought may have been a risk but there was very little. The beach is a National Trust beach and looked after impeccably.

Reassurance

I also felt really reassured knowing that the caravan was just that one minute drive away, so if I was worried about anything at anytime we could be back there immediately. It was also fantastic to be able to have Lucia in the shower and washed down within 10 minutes of leaving the beach. We inspected her toes, feet and legs thoroughly and moisturised her deeply to ensure her skin didn’t dry out from the salty water and put her garments back on.

We had the most fabulous weather and did this four days in a row and had the most perfect little holiday. The caravan was wonderful, a real adventure for the kids and in the absolute perfect place for us to be able to enjoy beach time with both Max and Lucia. Watching them chasing each other about the sand, playing together, digging holes, splashing in the sea and overall just enjoying themselves – both in bare legs and feet – was priceless. This was a fantastic ‘first’ and definitely won’t be the last.

‘A little sand between your toes always takes away your woes’ – this summer it certainly did just that!

Filed Under: blog

Bare legged beauties

August 5, 2015 by Jo-Ann Greene 4 Comments

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As you know from a recent post, Max broke his leg at the start of the summer…and yesterday he got his 5th and final cast off. He has a pretty long road of recovery ahead of him but he will get there, one day a time.

He was so excited and happy to get his cast off and see his little leg again – and I have so enjoyed seeing it too after being hidden for six weeks! The simple truth is, I absolutely adore seeing Max and Lucia’s bare legs.

In Max’s case it is just lovely to see him in shorts. Because our weather is usually so rubbish this is a rarity so when he is able to get his legs out he looks so lovely, fresh and summery.

For Lucia though it is different. As her legs are covered from morning until night 365 days a year, I delight in seeing her little bare legs and feet first thing in the morning before her garments go on, and for the hour or so before going to bed at night. It is really hard to explain how I feel as I know it might sound a little bit daft, but it is one of those things no one else would ever have to think about.

The other day she spilt some water on herself around tea time so I took off her compression tights and I decided not to put a new pair on as it was nearing the end of the day. So I just put her leggings on over her bare legs – like anyone else would do everyday. Seeing her little bare ankles and feet looked so lovely, so natural and so free. And Lucia knew it was different too and skipped around the house giggling! When Daryn arrived home from work it was the first thing he noticed too as this never happens.

As I said before it is really hard to describe how I feel. It’s just something really special. Something that is taken for granted for the majority of people. I love her bare legs and feet so much that every night I spend a few minutes looking at her lying in bed, so comfortable and as I said before, ‘free’. It’s the only word I can think of and I am not usually stuck for words. I can only imagine how it must feel to wear tight compression garments all day every day, and although she rarely complains I know how much she loves to get them off and have her ‘naked leg time’ as she calls it.

This is definitely bit of a strange post and I have found it hard to write so I hope it makes some sense! I am very happy to say that tonight my two babies have all four of their combined legs bare in bed, and that’s a great thing.

Filed Under: blog

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a little bit about us

Hello and welcome to Little Miss Lucia’s Lymphoedema Life blog! Lucia is my beautiful daughter, born on 12/03/12 with all ten fingers and all ten toes. However, her 10 perfect toes were puffy, as were her feet and legs. After months of tests and hospital appointments she was finally diagnosed with Primary Lymphoedema. Read More

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